“The child needs heart surgery urgently. Without it, she will suffer from cyanosis, oxygen deprivation, breathing difficulties, and could even die. It is heartbreaking to see her relying on oxygen support. We hope she can recover soon,”

Nur Widad binti Jamadin, a baby girl from Langkawi, Kedah, appeared normal at birth. However, a week later, she was hospitalized for jaundice. During this time, doctors noticed her rapid heartbeat, suspected a heart issue, and referred her to the central hospital for further examination. It was then discovered that she suffers from Heterotaxy Syndrome. In addition to having no spleen, she also has extremely complex congenital heart defects, including a single ventricle, underdeveloped left ventricle, unbalanced atrioventricular septal defect (AVSD), transposition of the great arteries, and total anomalous pulmonary venous drainage (TAPVD).

Her survival is crucial for her to undergo further treatment. Her helpless parents are desperately seeking to raise RM130,000 for the surgery.

【The baby girl was born without a spleen, making her prone to bacterial infections. However, the most urgent issue is to address her heart condition first】

Nur Widad developed normally during the fetal stage without any abnormalities. She was born full-term at the hospital with no issues and was discharged home with no symptoms. The family of six enjoyed their first weekend together.

One week after birth, the baby was admitted to the hospital due to jaundice. The doctors noticed her rapid heartbeat and suspected a heart problem. She was referred to the central hospital for detailed examination, which revealed that the baby was born without a spleen, making her highly susceptible to bacterial infections. Further tests confirmed that she suffers from a rare condition called Heterotaxy Syndrome, along with heart defects such as holes in the heart, narrowed blood vessels, and valve problems.

The baby is currently in the hospital, relying on oxygen support. The doctors have advised that urgent heart surgery is needed. However, the surgery carries a 10-20% risk. Without the surgery, she faces the threat of lung water retention, bacterial infections, and even death.

The doctors have outlined a plan for three surgeries in stages. The first surgery is critical for her survival, the second surgery is needed when she is between 6 to 12 months old, and the third surgery should take place between 4 to 6 years of age to repair the heart.

The first stage of surgery will address the TAPVD issue, pulmonary artery banding (PA Banding), and atrial septostomy. Due to the 10-20% risk, the family urgently needs to raise RM130,000 for the surgery.

The father, Jamadin bin Ani (44), is a beef seller earning RM1,700 per month. The mother, Norshida bt Zulkeple Amin (39), previously worked part-time cleaning homestays, earning RM30 per day, but has stopped working since her pregnancy. The couple has four children: a 15-year-old son, 10-year-old twins, and the newborn patient.

After reviewing the case, the committee has decided to raise the necessary funds for the baby’s surgery. The parents have agreed to entrust the fundraising activities entirely to One Hope Charity, which will manage and receive the donations. One Hope Charity will also allocate RM10,000 from the “Emergency Medical and Contingency Reserve Fund” for this case.

For any inquiries or to donate, please call the following hotlines: 04-539 9212, 016-419 2192, 019-232 2192, 018-911 4192.