Urgent Fundraising – Harisman Naufan (Heart Disease)



An aboriginal mother moved to a nearby city to live temporarily in order to wait for the childbirth and her baby was finally born. However, the baby was diagnosed with a serious heart disease right after he was born, and was rushed to the intensive care unit (ICU). The baby is now one month old, but the parents can only see how he fights to survive in the incubator through the glass panels of the ICU.

Baby Harisman Naufan Bin Amran is from an aboriginal Temiar tribe that live in the deep mountains of Grik, Perak. The mother gave birth to him at full-term in Gerik Hospital, and the birth process went smoothly. Unexpectedly, the baby was cyanotic, accompanied by shortness of breath and wheezing shortly after birth, so he was rushed to the ICU for emergency treatment.

He was transferred to Taiping Hospital for examination on the next day, but as the hospital did not have the relevant specialist, he was transferred again to Penang Hospital. The examination result revealed that the baby has a serious heart disease and needed a surgery in two weeks, otherwise, his life will be in danger. However, the parents are worried as they are unable to afford the RM95,000 in surgical fee.

【Aboriginal people are happy go lucky. They depends on the natural resources available around them to live. They pluck wild fruits and vegetables, trap and catch animals or some river fish, and serve it on their dining tables, but they do not have extra cash. But now, their son is suffering from congenital heart disease and they need to bear huge medical expenses, so they are helpless. They have no choice but to seek help】

Harisman Naufan was born on 27 May and was diagnosed with cardiovascular reversal right after birth. He suffers from transposition of the great arteries (TGA), ventricular septal defect (VSD), atrial septal defect (ASD) and patent ductus arteriosus (PDA), so he needs an emergency life-saving surgery to save his life.

The baby is currently relying on breathing aids to survive in the ICU of Penang Hospital. He has not returned home since birth, and he needs undergo the life-saving surgery at a specialist hospital, otherwise, his life will be in danger.

The patient is an indigenous baby of Temiar tribe living in the deep mountains of Grik, Perak. After a turn from the main tar road, it takes about another two hours to reach the tribe through uneven muddy roads. There is no water and electricity supply there. The people can only light up the candles at night, and drink water from the mountain spring.

The mother followed the child to the hospital in the ambulance, while the father took along RM700, which was all the money he had, and rode on an e-hailing vehicle for five to six hours to the hospital. They stay at a hostel for patient’s family provided by the hospital, and rely on the RM700 to survive for nearly a month. They are clueless about the medical condition of their child, and they don’t even know when their baby can undergo the surgery.

The 30-year-old father Amran Bin Bayang is a rubber tapper with a salary ranging from RM100 to RM500. The 25-year-old mother Rohana Bt Jali is a housewife. The couple have three children – a seven-year-old son, two-year-old daughter and the baby with heart disease.

As they live in the deep mountains, they usually feed on tapioca, rice, wild fruits and vegetables, river fish and other natural resources around them. They also keep poultry. The father only has a motorcycle, which he uses to go to the rubber plantation for work.

Although they are indigenous people with no water and electricity supply, and it was something hard for them to provide all the information needed, but the parents still tried their best to provide whatever needed through the resources within their means, such as seeking help from their parents in the hometown and the assistance and verification from the Department of Orang Asli Development (JAKOA), hoping that their son can undergo the surgery as soon as possible.

After reviewing the case, One Hope Charity decided to assist Harisman Naufan in raising the medical expenses. The family agreed to fully authorise One Hope Charity to take charge of the fundraising and collect the donations from the well-wishers on their behalf.

The family agrees to allow ONE HOPE CHARITY to take charge of the fundraising and, at the same time, accumulate donations from the public. For enquiries, please contact our careline at 04-5399212, 016-4192192 or 019-2322192.

GOAL achieved thanks for all your donations