When happy, she screams; when angry, she also screams. At the age of 4 this year, she is different from other children her age. Hearing impairment prevents her from learning normally, and she can only express her emotions to those around her through screams.
Alysia Lee Jia En from Balakong, Selangor, had complications at birth due to inhaling meconium and was placed in an incubator for about a week. Fortunately, her physical health was not severely affected. After the full moon celebration, when her parents brought her back to the hospital for a check-up, there were suspicions of hearing problems. However, without thorough testing, she was sent home with her parents.
【Despite being lively and independent from a young age, hearing impairment has become a barrier to her learning】
Unfortunately, when she was about 7 months old, her parents were arrested for drug-related offenses and awaited formal trial in prison. Since then, Alysia has been taken care of by her maternal relatives. No one noticed her hearing problems until she was over 1 year old. During a New Year's celebration, while others scattered at the sound of firecrackers, she stood alone in place. It was then realized that she had been living in a silent world.
Alysia's grandmother, Lee Geok Lai (57 years old), and her uncle, Ng Wai Sing (34 years old), took her to the hospital for examination. The diagnosis revealed bilateral sensorineural hearing loss, with the left ear being more affected. The doctor suggested implanting a cochlear implant to improve her hearing. Before the formal surgery, she had to rely on hearing aids temporarily.
Despite being lively and active, Alysia attends a nearby kindergarten where, due to difficulty communicating with peers, she is placed in a class for 2 to 3-year-olds. Lee Yu Li believes that Alysia has good learning abilities. Although she cannot vocalize, she knows basic letters and numbers. Alysia is also independent and prefers to do things like eating and handling toys on her own.
"Unfortunately, she can't express herself, not knowing what she should do."
【The burden is heavy, and the family does not have the financial capacity to cover the cost of implanting the cochlear device】
Apart from grandmother Lee Geok Lai, Alysia's uncle, Ng Wai Sing, is also one of her guardians. As a freelance photographer, his income depends on the number of photography assignments he receives, ranging from RM2000 to RM4000 per month. Since Alysia's grandfather, Ng Chin Chuan, nearing the age of 60, has retired, the family's expenses are primarily shouldered by Huang Weisheng, including living expenses, car loan, transportation costs, insurance, and utility bills. Additionally, he is about to get married and needs to manage the mortgage for a new house. Furthermore, they need to prepare for Alysia's mother's trial, especially considering the substantial legal fees involved.
Watching Alysia grow up without being able to speak or learn normally, they decided, after discussion, to follow the doctor's advice and implant a cochlear device in her left ear to improve her hearing and learning abilities. However, the significant cost of the cochlear implant, amounting to RM77,800, has left the financially constrained family unable to bear the expense.
After a home visit and assessment, One Hope Charity has decided to assist them in raising RM77,800 for the surgery. The family has agreed to entrust the fundraising activities to the One Hope Charity, and they will be collecting the donations. For any inquiries, you can contact the hotline at 04-539 9212, 016-4192 192, 019-2322 192, or 018-911 4192.