After six years of marriage, the couple finally got their first child. Unexpectedly, their daughter was diagnosed with congenital heart disease. The doctor implanted a heart stent to relieve her condition temporarily when she was two months old. And now, the baby is ten months old, and she needs heart surgery to survive. However, her parents cannot afford the surgical fee of RM55,000.

Dian Naura Bt Muhd Adlifitri from Sungai Petani, Kedah, is ten months old. Her lips and nails are often cyanotic, and the oxygen level in her body has dropped sharply. She was also admitted to the hospital due to frequent asthma. Initially, the hospital had arranged for her to undergo surgery. Still, the doctor informed the parents at the last minute that their girl’s condition was complicated and she needed to be transferred to a specialist hospital for heart repair surgery.

The parents had no choice but to follow the doctor’s arrangement. However, the surgical expenses at the specialist hospital are RM55,000. For a family that is frugal in living expenses, her parents cannot afford her surgical fee. Hence, they approached One Hope Charity for help.

【Watching her daughter suffering from congenital heart disease, the mother blamed herself a lot, and she felt helpless】

During the pregnancy, Dian Naura was normal. However, the doctor decided to have a caesarean section when the mother was about to give birth due to meconium. The nurses brought the baby away after birth, and the hospital told the parents they suspected the baby girl had a heart problem. They also referred her to Penang Hospital for a thorough examination.

The examination showed that she had Tetralogy of Fallot (TOF) and two holes in the heart. At that time, the doctor said that the baby girl had to be 10kg before she could undergo surgery. Unexpectedly, during a regular follow-up when she was two months old, the doctor discovered that her oxygen level had dropped drastically, and she needed an emergency right ventricular outflow tract (RVOT) procedure. She required frequent monitoring of her blood oxygen after the surgery.

The now 10-month-old baby girl is a blue baby. She will suffer from shortness of breath when she moves too much, and her lips and nails will turn cyanotic, so she needs to crawl up her legs for blood with oxygen to flow throughout her body. She was rushed to the emergency room before due to breathing difficulty.

As the girl grew up, she needed a modified Blalock-Taussig shunt (MBTS), which cost RM55,000 to relieve her condition further.

Her 32-year-old father, Muhd Adli Fitri Bin Hasshim, works as a deliveryman at a courier company, earning between RM2,500 and RM4,500 a month. His income depends on his workload, and as his daughter is often in and out of the hospital, his income has become unstable. Her 32-year-old mother, Nur Syafiqah Binti Pa’Su, is a housewife. The couple has their only daughter after six years of marriage.

After reviewing the case following a home visit, One Hope Charity decided to assist in raising the RM55,000 surgical fee. The family agreed to fully authorise One Hope Charity to take charge of the fundraising and collect donations from the well-wishers on their behalf.

Call One Hope Charity’s hotline at 016-419 2192 or 019-232 2192.