**RM5,000 has been channelled from the “emergency medical reserve fund”. Hence, One Hope Charity will only launch a fundraising of RM85,000 for this case.**
Although he is a special child, his parents’ biggest wish is to see their son grow up safely and healthily. The health issue the boy is facing makes the father worried and depressed, and only hopes that the child can tide over this challenge.
Nine-year-old Ooi Wen Jing from Penang received treatment at the hospital for jaundice at birth. Unexpectedly, the doctor discovered a heart murmur and confirmed that he had a complex heart disease. He underwent multiple heart repair surgeries since he was a baby and managed to grow up safely after that.
However, during a regular follow-up two years ago, the doctor found that the fibro-muscular growing under Wen Jing’s heart aortic valve had affected his oxygen supply. After two years of observation, the doctor told the parents that the treatment could not be delayed further and the boy needed surgery as soon as possible. Otherwise, the sarcoma might grow and block the blood vessels, affecting the oxygen supply.
Yet, the surgery cost is high, which overwhelms the helpless parents. They do not want to delay their child’s treatment and hope the public can help them with the RM90,000 surgical fee.
【The child will not have cyanosis, but he easily suffers from shortness of breath after playing for a short while. Occasionally, he will pat his chest to show his parents that he feels some discomfort】
The mother’s prenatal examinations showed that the fetus was normal. However, the baby was hospitalised due to jaundice, and the doctor discovered the newborn had a murmur heartbeat. The final examination confirmed that the baby suffered from patent ductus arteriosus (PDA), ventricular septal defect (VSD), and atrial septal defect (ASD). He had heart repair surgeries, and regular follow-up visits showed positive progress. The child managed to grow up safely.
When Wen Jing began learning to walk, his family found his growth was relatively slow. After taking him to the hospital for examinations, the doctor diagnosed him with learning difficulty and hyperactivity. He is currently studying in a special education class. He can care for himself and play with his friends, and can only say a few words. He can’t express himself well, but he is susceptible to maps. He is the precious son in his parents’ eyes.
When he was seven, the doctor found that he had fibro-muscular under the aortic valve of his heart, causing arterial stenosis, which affected the blood pump function and is life-threatening.
His 38-year-old father, Ooi Chee Hiong, is an e-hailing driver, earning about RM3,000 a month. His 35-year-old mother, Nguyen Thi Mai, is a hairdresser with a monthly income of RM2,000. The couple also has a seven-year-old son. The family of four lives in the Chee Hiong’s ancestral house, and they need to pay for the expenses of the boys’ grandparents, aged 74 and 69.
After reviewing the case following a home visit, One Hope Charity decided to assist Wen Jing in raising the RM80,000 he needed so that he could undergo surgery as soon as possible to get rid of the heart disease.
His family agreed to fully authorise One Hope Charity to take charge of the fundraising and collect donations from the well-wishers on their behalf. Call One Hope Charity’s hotline at 04-539 9212, 016-419 2192, 019-232 2192 or 018-911 4192 if you have questions.