Urgent Fundraising – Evonne To (Symptomic Genetic Epilepsy)



“She is our only daughter, so we cannot give up on her. Our biggest hope is that the doctor tells us our baby girl can care for herself and live a normal life! We hope to determine the cause immediately to prevent her from missing the golden window for treatment.”

When the mother was pregnant with Evonne To, she underwent prenatal examinations, and the results showed that the fetus was normal. Unexpectedly, the baby had frequent fever, cough and phlegm after birth. Tests showed a lung infection, so the doctor prescribed medications to control her condition. When the baby was eight months old, she had a sudden seizure. She also experienced shortness of breath and was intubated. After several examinations, the doctor confirmed that she had a chromosomal defect leading to symptomatic genetic epilepsy.

The parents are distraught with their daughter’s chromosomal defect, but they can’t just give up their child. Hence, they approached One Hope Charity to help raise RM120,000 for her medical expenses.

【The baby developed a series of complications due to epileptic seizures. The baby needs long-term use of multiple medical equipments, such as a wheelchair, and special milk powder, among others. She also needs regular replacement of feeding tubes and attends physiotherapy sessions】

Three-year-old baby girl Evonne, from Jitra in Kedah, was admitted to the hospital in May 2022 due to pneumonia. The doctor later diagnosed her with Methicillin-resistant Staphylococcus Aureus (MRSA). At that time, she received three-month treatment in the intensive care unit. The doctor also performed a tracheotomy and gastrostomy on her throat. In mid of August, the doctor also prescribed special milk powder for epilepsy patients for Evonne.

Due to Global Development Delay, central hypotonia, tracheobronchomalacia, severe gastroesophageal reflux, immune deficiency and hypothyroidism, baby Evonne must receive intravenous immunoglobulin (IVIg) every month at the hospital. IVIg is a treatment for patients with antibody deficiency. Otherwise, their immunity will drop, which will either cause bacterial infections or even losing their lives if the condition is severe.

The doctor suggested baby Evonne receive monthly treatment with intravenous immunoglobulin (IVIg) infusion. The medications cost RM45,248 a year. She also needs six boxes of special milk powder, which cost RM23 each, totalling RM4,140 monthly. In addition, she needs to replace the gastrostomy tube every year and the tracheostomy tube once every fortnight.

Little Evonne is currently relying on a BiPAP machine to breathe. She can only stop using the ventilator for a short while. Otherwise, the girl will experience shortness of breath and hypoxia. She needs long-term care, and the hospital arranged for her to undergo physiotherapy, occupational therapy and other treatments. And now, she can sit for five minutes without needing help from people around her. The doctor also suggested that Evonne needs a special wheelchair to maintain a better sitting posture.

Her 37-year-old father, To Min Hong, is a lorry driver with a monthly salary of RM2,000. Her 29-year-old mother, Lee Hsueh Yi, was a clerk but resigned to care for her daughter. Evonne is their only daughter. Her father’s monthly income is only enough to pay their regular living expenses, and the parents cannot afford the substantial medical expenditure. Therefore, they approached One Hope Charity for help.

After reviewing the case, One Hope Charity decided to raise all the medical expenditures that baby Evonne needed. Her family agreed to fully authorise One Hope Charity to take charge of the fundraising and collect donations from the well-wishers on their behalf. Call One Hope Charity’s hotline at 04-539 9212, 016-419 2192, 019-232 2192 or 018-911 4192 if you have questions.

GOAL achieved thanks for all your donations