“If my baby does not undergo a bone marrow transplant, he may not live over one-year-old. His body has no immunity at all and might die from bacterial infections at any time. I hope you can help to save my baby!”

Fong Crayson from Bukit Mertajam, Penang, was diagnosed with a rare chromosomal disorder (SCID) at birth. His body has no antibodies, making him vulnerable to bacterial and viral threats.

Fong Crayson needs a bone marrow transplant, and his father's bone marrow is a suitable match for donation. This has rekindled his parents' hope, and they are seeking RM125,000 for medical expenses.

【The doctor told the family that one out of every 100,000 babies suffer from SCID disorder. The child has no immunity at all and will quickly get a bacterial infection. If baby Crayson does not undergo bone marrow transplantation, he may not live more than a year】

Fong Crayson was born in January this year. A blood test revealed a weak immune system, prompting doctors to arrange for genetic testing. He was ultimately diagnosed with a rare chromosomal disorder, severe combined immunodeficiency disease (SCID), which left his parents in despair.

The doctor told the parents that the baby would face more bacteria when he reached three months old. Therefore, the doctor recommended the baby undergo a bone marrow transplant as soon as possible to avoid delaying treatment and increasing the chance of getting a bacterial infection. Fortunately, the father’s bone marrow is a match and suitable for donation, giving the family hope.

Baby Crayson is developing well. Unlike other babies, he has no antibodies, so he can’t inject vaccines such as BCG. Otherwise, his situation will lead to whole-body peeling and bacterial infection. Since then, his mother has resigned and stayed at home, isolating herself from the world to take care of him.

And now, baby Crason needs to take antibiotics daily, and must go to the hospital for IVIG immunoglobulin injections once every three weeks to improve the resistance of his immune system to infection. The doctor suggested to refer him to Universiti Malaya Medical Centre for bone marrow transplantation. The estimated medical cost is RM125,000, which includes the anti-rejection medication, bacterial infection medications, follow-up treatment for a year and other expenses.

His 22-year-old father, Fong Jia Re, is a deliveryman with a salary of RM3,000 monthly. His 24-year-old mother, Poh Hui Ni, is a housewife, taking care of him full-time. The baby boy is the only son the couple has been looking forward to. The parents can only afford the transportation, accommodation and meals travelling between Penang and Kuala Lumpur, and they are helpless with the medical expenses their son needs.

After reviewing the case following a home visit, One Hope Charity decided to assist the patient in raising the RM125,000 in surgical expenses he needed. His family agreed to fully authorise One Hope Charity to take charge of the fundraising and collect donations from the well-wishers on their behalf. One Hope Charity also channelled RM5,000 from the Emergency Medical Reserve Fund for this application. Call One Hope Charity’s hotline at 04-539 9212, 016-419 2192, 019-232 2192 or 018-911 4192 if you have questions.