Behind the looks of a young and adorable girl, hides a life-threatening heart disease that could end one’s life. If she did not take her medicine on time, her face would turn purplish. The family constantly worries about her well-being, and hoped that through One Hope Charity, they are able to raise RM70,000 for the heart surgery and save their daughter’s life.
Nur Darisya Farha Binti Mohd Jazli is a ten-month-old girl from Bercham, Perak. When she was still inside her mother’s womb, the doctor already identified that the baby has congenital heart disease. The only way to further confirm the diagnosis was to wait till the baby is born.
The day before the delivery, the mother returned back to her hometown back in Kedah for delivery. On May 12 last year, the baby girl was born in Kedah general hospital. Because of low oxygen rate in the baby’s body after delivery, the doctor arranged the newborn to the NICU ward for two weeks before approving her discharge.
Although the doctor has approved to discharge the newborn, she must go for regular medical checkup to examine her medical condition and its development. Furthermore, the doctor prescribed medication for her in order to control her sickness, and advised to wait until the baby weighed up to 10kg before proceeding with her heart repair surgery.
Today, the baby girl now weighs 10kg, which is now suitable to undergo surgery. According to the specialist, her heart related issues categorised as Tetralogy of Failure (TOF). This kind of heart generally has four defects, namely pulmonary artery stenosis, ventricular septal defect, right ventricular hypertrophy, and aortic spanning.
This bright young girl would show no difference with any other ordinary child when her illness did not affect her. But if she ever felt too tired, crying non-stop, for missing out on her medication, her face would turn purplish, putting her parents in shock and fear.
The family has been constantly worrying about her medical condition, fearing that one day she would lose her life and not be able to save her, hence they agreed to take their baby for surgery, in hopes to put an end to the illness.
Ever since Nur Darisya Farha was born, she had to do her regular medical checkups in Penang. Which is why until today, the family had not been able to return back home in Bercham. Currently they are staying in their home in Kedah.
The father Mohd Jazli bin Latif, 28, sells clothes online, with a monthly earning between RM1,500 and RM 1,800 whereas the mother Syafinaz binti Shahabudin, 29, is a housewife. The parents have a four-year-old son and a three-year-old daughter. The elder daughter has a hole in her heart, but did not need to undergo surgery as it can recover on its own.
The family were unable to bear the expensive medical fee, hence they approached One Hope Charity for aid. After reviewing the case, the Association has agreed to launch a fundraising campaign to raise RM70,000 for the heart surgery, in hopes that the baby girl will not need to worry about her heart disease and growth healthy and strong.
Family agrees to allow One Hope Charity to take charge of the fundraising and at the same time, accumulating the donations from the public. For enquiries, please contact our careline at 016-4192192, 019-2322192 or 04-5399212.