A total of RM10,000 from the “Emergency Medical Reserve Fund” has been channelled; hence, One Hope Charity will only launch fundraising of RM100,000 for this case.
"We don't want to give up on our child. As long as there's hope for treatment, as parents, we cannot abandon her. Our chances of having another child are slim, and our baby is fighting courageously. We appeal to everyone to help save our child."
Clockwise from Penang, the 4-month-old baby girl, Chong Jia Xing, is the much-anticipated blessing for her parents. However, shortly after birth, her whole body turned blue and her oxygen saturation levels dropped significantly. She was rushed to the intensive care unit (ICU) and has been on respiratory support for the past 4 months. During this time, her parents have been tirelessly by her side, cheering her on, learning how to feed and change her diapers.
Now, a treatment plan has finally been proposed, and the parents are imploring the public for assistance in raising the RM110,000 needed for medical expenses.
【Mother's Battle with Ovarian Cancer and the Long-awaited Arrival of Their Child】
Years ago, the mother battled stage 1 ovarian cancer. After undergoing treatment and completing a 5-year observation period, the doctor allowed her to conceive. However, due to her age of 42, the couple lived their lives with an open mind, knowing that the chances of having a child were slim.
Not long after, the mother confirmed her pregnancy, and all prenatal check-ups were normal. At 33 weeks pregnant, a heart scan was conducted and everything seemed fine. The doctor scheduled a Caesarean section for the end of April. But unexpectedly, in mid-April, she experienced labor pains and her water broke. An emergency Caesarean section was performed, and the baby was born prematurely. Due to weak lungs, the baby was immediately transferred to the ICU. The baby's body was cyanotic, indicating low oxygen levels. The sternum was convex and concave, raising concerns about heart issues.
Consequently, she was referred to a central hospital for further tests, where it was confirmed that the baby had a hole in her heart and a valve that couldn't close properly. At 2 months old, she underwent surgery to narrow her blood vessels. Unfortunately, her condition worsened after the first surgery, leading to a second procedure the next day. Her condition improved after the second surgery.
Throughout this process, the baby had to be resuscitated twice, and she has received three injections of a heart-strengthening medication. The doctors emphasized that the baby's survival now depends on her resilience. The parents endured fear and anxiety, living in constant dread of a hospital phone call.
Although the baby's condition was observed by doctors, after more than a month, she still cannot breathe independently and requires oxygen support. During her most recent check-up, the doctor revealed that the baby cannot be solely reliant on oxygen support, as she cannot be discharged without undergoing surgery. Depending solely on oxygen support might also affect her lung function.
The doctors painted a grim picture of the baby's condition, leaving the parents deeply anxious and unsure of what to do. They are almost living in despair and cry every day.
Due to the urgency of the situation, the baby was referred to a specialized hospital. The doctors informed the parents that the baby needs surgery to repair the hole in her heart, fix the valve, and address the narrowed blood vessels – all in a single surgery. However, the cost of this surgery amounts to a staggering RM110,000. The parents are thrilled about the chance for their child to receive treatment, but they are also overwhelmed by the substantial medical expenses.
【Watching Their Child Laugh and Cry, the Parents Spare No Effort to Give Her a Chance】
For the past 4 months, the parents have braved all kinds of weather to visit their baby in the hospital every day. They seize the short two-hour window to interact with their child, as nurses guide the mother on how to feed, change diapers, and provide care. This is their only time to bond with their baby.
The father, Chong Chen Wei(42), used to work as a mechanic and even ventured into entrepreneurship before the pandemic struck. Unfortunately, his business fell apart due to the pandemic, and he found a job at an auto repair shop earlier this year. However, due to the baby's medical needs and frequent hospital visits, he was unable to work and was subsequently laid off, leaving him unemployed. The mother, Tan Bee Wah (43), works as a secretary, earning a monthly salary of around RM2,000.
The father openly admits that their baby is strong-willed and a blessing in their lives. Despite the challenges, they remain determined not to give up on their child.
After conducting a home visit and assessment, our organization has decided to assist the patient in raising the necessary RM110,000 for surgery and follow-up consultations. The family has entrusted the fundraising efforts to ONE HOPE CHARITY, based in Bukit Mertajam, Penang. For any inquiries, please contact the hotline at 04-539 9212, 016-4192 192, 019-2322 192, or 018-911 4192.