The parents were excited to welcome the arrival of their pigeon pair twins, but the twins were born with different physiques and health conditions – the elder sister was born small and she is very quiet, while the younger brother was born strong and healthy, and he is now lively and active. The elder sister, who was born a minute earlier, suffered from congenital heart disease, and also has lungs and breathing problems. Although she had undergone a stent placement surgery when she was two months old to relieve her condition, but she continued to use a continuous positive airway pressure (CPAP) device until she was one year old.
Recently, the sister showed signs of hypoxia, her lips became cyanotic, and her face turned pale when she moved excessively. The doctor informed that she needed a second heart repair surgery. However, the parents are worried as they are unable to afford the surgical fee that cost RM90,000.
【It was rare that a fetus was diagnosed with complicated congenital heart disease. The sister of a pigeon pair twins had to rely on CPAP device from the day she was born until she was one year old】
The pigeon pair twins – the elder sister Nur Akma Muizzah and her younger brother Mohammad Akmal Muqri are from Kedah. At the 36th week of pregnancy, the sister was found to have slow heartbeats. In addition, the mother suffered from gestational diabetes and there was a risk of fetal drowning, so the doctor did not want to take it lightly and arranged the mother to undergo an emergency caesarean section. The twins were born on 3 December 2019, and they were sent to the intensive care unit immediately for examination.
Examination results showed that the brother Mohammad Akmal Muqri was healthy. He weighed 2.4kg at birth, and he was allowed to be discharged after a week of hospitalisation. However, the sister Nur Akma Muizzah only weighed 1.4kg at that time, and she was diagnosed with pulmonary atresia with ventricular septal defect (PA-VSD), which is a complex congenital heart disease characterised by underdevelopment of the right ventricular outflow tract with atresia of the pulmonary valve.
The sister was referred to Penang Hospital for a stent placement surgery when she was two months old, and she was allowed to be discharged after that. Due to the lungs problems, she also had to rely on a respiratory device until she was one year old. She also has to attend regular follow-up visits at the hospital.
The baby girl is now two years old, and she was referred to a specialist hospital for treatment. The doctor informed that the blood vessels connecting to the heart are too thin, and the baby girl also had a hole in the heart, so the surgery is expected to cost RM90,000.
The twins’ 35-year-old father Mohd Alham bin Abdul Gh was a factory operator with a salary of over RM1,000 a month, but he was forced to quit his job to take care of his ill daughter and sent her to the hospital regularly. He is now an odd job worker, helping villagers to build houses, masonry works, weeding, etc, and his income is unstable. Their 37-year-old mother Nur Adlinda bt Azmi is a housewife. The couple have four children, aged 13, 11 and the pair of twins.
The family is facing financial difficulties. They are unable to afford the huge medical expenses. After reviewing the case, One Hope Charity decided to assist the baby girl in raising the RM90,00 for her medical expenses. The family agreed to fully authorise One Hope Charity to take charge of the fundraising and collect donations from the public on their behalf.
The family agrees to allow ONE HOPE CHARITY to take charge of the fundraising and, at the same time, accumulate donations from the public. For enquiries, please contact our careline at 04-5399212, 016-4192192 or 019-2322192.